Swedish Information Centre for Rare Diseases
The Swedish Information Centre for Rare Diseases contains information on several hundred rare diseases. The aim of the information center is to raise awareness and increase knowledge about rare diseases. In Sweden, the official definition of rare diseases is “disorders resulting in substantial disability and affecting no more than one hundred individuals per million population.” Leading experts on each disease provide the information material, which is reviewed by a scientific advisory board before publication. The center also assists in the retrieval of information on rare diseases and mediates contacts with medical experts and patient associations.